Thursday, January 15, 2015

Remedy and Reaction by Paul Starr (2011)

Part I reviews some of the origins of healthcare reform referencing a lot of the work that Starr did in his previous work. Again the beauty of his language extends into the titles and subtitles of his chapters which I will outline with comments here.
  • Stumbling toward Comprehensive Reform
    • political deadlock
    • the American path to health insurance
  • Frustrated ambitions, liberal and conservative
    • the shaping of the Clinton health plan (Starr was part of the Clinton's huge team of experts, and has fascinating inside information.
    • getting to no
  • the rise of a reform consensus 2006-2008
    • Romney and MA model
    • toward minimally invasive reform
    • making 2008 a healthcare election
    • Obama and the rollercoaster to reform
    • why healthcare reform passed and climate legislation didn't
The Affordable Care Act as Public Philosophy 
 This was the part of the book that really forced me to think. Previous sections were interesting and enlightening, but this analysis of legislation within the paradigms of some philosophical ideas really sparkled. 

Overall, Starr contends that the goal of the ACA was to align one major institution (healthcare) so that it agrees more closely with principles of justice and efficiency. Starr presents the ACA's provisions as they bear upon central problems of public philosophy.

fairness and equality
Rights versus obligations of individuals and states. For states, the question is whether healthcare is a service that the community has an obligation to provide (like basic education). If it is, then the principle of "actuarial fairness" should be abandon. Rather than each person paying for what they use, the cost of care should be spread over the healthy and sick evenly "to avoid imposing burdens on the sick that effectively bar them from access to medical care" (242). Starr invites consideration of the European ideal of "solidarity". He is careful to delineate that the "moral interest in ensuring care for the sick does not require shared responsibility for services such as cosmetic surgery or amenities such as private hospital rooms" (242). 

Starr notes that we do have one federal right to health care, The Emergency Medical Treatment and Active Labor Act but that this is funded by shifting costs to insured patients, "a hidden transfer that the American public has apparently preferred to being openly taxed for the same purpose" (242). The ACA "attempts to extend shared responsibility without entirely banishing actuarial fairness, and it makes the health insurance system more inclusive without flattening its tiered and unequal structure" (243). In an unregulated insurance market, the liability equals 11:1 between a 60yo and a 20yo American. That means older adults would pay 11 times as much for insurance. A pure "community rating" insurance would charge these people the same amount. The ACA limits differences in rates to a 3:1 ratio. Ironically the increased burden falls largely on the poor and middle class who are under 400% (this is where subsidies stop) of the poverty line because those over this level buy insurance independently and most get it through employers, few of which ask older workers to pay more than younger workers for insurance. 

While libertarians cringe at the young paying for the old, shared responsibility can be described as "enlightened self-interest" as those young workers will almost inevitably be old soon enough. 

Subsidies were clarified as a way to make insurance premiums a scaled percentage of income, so that premiums are 3-4% of income for the working poor, and up to 9% of income for those at 400% of poverty level. They're calculated based on second lowest priced silver plan in each area.

The levels are also explained clearly:
   Bronze covers 60% of healthcare costs
   Silver covers 70%
   Gold covers 80%
   Platinum covers 90%


responsibility and freedom
Conservatives support freedom while liberals support equality? Starr argues that a conservatives are using a "shriveled conception of freedom"  that fails to recognize that "health itself is a matter of personal freedom" (247). He reminds libertarians that "there are no rights without a government to protect them" and that "freedom is impossible without the framework of law that the state upholds". Starr recognizes that conservatives fear "arbitrary and capricious" government power, but reminds them that these same interests should motivate them to be concerned about private power, such as that of an insurance company. A law that wields government power in order to reduce arbitrary and unreasonable private powers "may also increase individual freedom". 

federalism and finance
   The subsidiarity principle has solid rationale for keeping decisions at no higher level of government than is necessary. "History complicates theory". Leaving healthcare to the states would mean "denying access to medical care and insurance" for "millions of the poor and near-poor in the South and Southwest" (253). 
   Financing is complicated.

health and the public household
   Health insurance as insurance against unexpected costs or as prepayment for medical services? If you believe the former, than moral hazard is a big deal, and people should pay out of pocket for ordinary expenses. The prepayment model  conceives that limiting coverate to catastrophic costs "creates perverse incentives favoring technologically intensive services to the neglect of primary care and prevention" (259). 
   The ACA supports new nonprofit Patient Centered Outcomes Research Institute to compare clinical effectiveness. "But the law bars use of the findings as mandates or guidelines for coverage or payment" (263). If the Independent Payment Advisory Board gets struck down by the supreme court there will be trouble, because "if we cannot say no to paying for services that are clinically ineffective, we will surely have no choice but to limit services that are clinically valuable" (263).  

The Peculiar Struggle
"Other democracies long ago resolved whether they have an obligation to provide care for the sick and protection against medical costs" (279).  


"If the special interests were arrayed on one side and the suffering masses on the other, the conflict would fit easily into a familiar populist picture of the world. But though the health insurers, drug companies, and other interests profit from the health system, they are not alone responsible for maintaining it. The bias against change also comes from members of the protected public. No other major democracy created a financing system that provides the biggest tax breaks to the people with the best private insurance; no other major democracy established a separate program for the elderly. A variety of other programs protect particular groups. These partial measures have become major obstacles to the efforts to control costs and to extend protection to the uninsured. The resistance to reform didn't arise because Americans were such determined individualists that they rejected all government help; much of the resistance has come from members of an entitled majority with a privileged position in the public-subsidy system. The potency of these entitlements lies in the psychology of self-exemption they instill; the beneficiaries do not understand themselves as benefiting from government assistance or as sharing a common condition with the excluded. The tax subsidies are nearly invisible to those who receive them; Medicare invites the elderly to believe that they have earned its benefits, whereas other claimants have not. Morally armed, they can reject helping others in need as a matter of high principle; after all, Americans shouldn't look to the government for help" (280).

Wednesday, January 7, 2015

The Social Transformation of American Medicine by Paul Starr (1982)

Should be required reading for all student physicians. Absolutely brilliant historical account of the beginnings of the profession and industry of healthcare in the United States.

Key ideas outlined in Starr's chapter titles and subtitles that I might be able to describe to you if you asked include;

  • professional sovereignty
    • the market and professional autonomy
    • legitimate complexity
    • origins of medical sectarianism
      • explained origin of homeopathy, eclectics, and orthodox
  • reconstitution of the hospital
    • Hill Burton Act
  • public health vs private practice
  • capitalism and the doctors
    • professional resistance to corporate control
  • the struggle for healthcare reform
    • why America lagged
    • The New Deal
    • Socialized medicine and the Cold War
  • health insurance origins
    • the birth of the blues
    • private social security
  • focus on research
    • how the medical center gained power
  • 1970-1974
    • contradictions of accommodation
    • generalization of rights
    • conservative assimilation of reform
  • 1975-1980
    • generalization of doubt
    • liberal impasse
  • The coming of the corporation
And that's where he leaves off in this masterful work. 

Monday, September 15, 2014

The Spirit Catches You and You Fall Down by Anne Fadiman

I'm re-reading this book for my social and behavioral determinants of health course as part of my MPH coursework this year.

This story has innumerable examples of how culture affects the psychology and behavior of the parents and community of one sick Hmong child.

  • beliefs about what causes sickness
    • epilepsy is when the soul flees the body, or is stolen.
      • causes concern but also pride
    • medication was causing sickness
    • can't give medicine forever
  • beliefs about what cures sickness
    • treat the soul and the body
      • ceremonies
      • rituals
    • Western medicine seen as disrespectful
      • finite amount of blood (but repeated blood tests)
      • can't take out organs without messing up next life
    • misconceptions about what the doctors were trying to do lead to fear
  • the rituals required for being and then for un-being (living and dying)
    • attaching the soul to the body
    • burying the placenta under the home



The behaviors and beliefs of the US medical community are painfully illuminated by this collision

  • Epilepsy has a natural cause just as other diseases have
    • not asking the family what they thought was causing the seizures
  • The shamanistic rituals might be harmful
    • not allowing Hmong mothers to take home their placentas
    • cutting off spirit strings for fear that they were fomites
  • Westerners hold all of the medical knowledge
    • medicine not as exchange, but as gift
  • Communication is not as important as are objective laboratory results
    • little effort to secure translators
    • 5-month delay between medical presentation and diagnosis of epilepsy
    • translating just language instead of having a "cultural broker" (95)
  • Failure to understand why dilantin was not being given at home, and resorting to CPS to intervene.
  • Viewed taboos against blood tests, spinal taps, surgery, anesthesia and autopsies as "self-defeating ignorance" (61).
  • Episiostomies one decade but not the next
  • Inability to compromise, to give up the "medically optimal" treatment in exchange for one that was more acceptable to the family (257).
  • Not a single word in Lia's entire medical chart "dealt with the Lees' perception of their daughter's illness" (259).



The political, social, and economic determinants of this Hmong family's situation include:

  • The long history of genocide attempts by the Chinese and other groups.
    • "they would rather flee, fight, or die than surrender"
  • The Hmong fight against French colonialism in 
  • The Hmong alignment with US interests against the socialist Pathet Lao party throughout the Laotian civil war, and then when the US and Hmong were defeated and the Vientiane government fell in 1975, yet another attempted genocide of the Hmong.
  • The Lees' time in a Thailand refugee camp Ban Vinai.
  • Immigration and placement in Merced, CA.
  • Racism, misunderstanding
  • Each side expected the other to be grateful.
  • US success measured in economic terms

The medical system of the US
  • No payment for cognitive work or time spent with interpreters
  • Practice is responsible for paying for interpreter
  • "Evidence based"
  • Little training in cultural medicine
  • little training in cognitive errors. "If it had been a brand-new kid walking off the street, I guarantee you Neil would have done a septic workup and he would have caught it. But this was Lia. No one at MCMC woul have noticed anything but her seiaure. Lia was her seizures" (256). 
  • The idea of "compliance" (261) "implies moral hegemony". 
What have I learned from this book? What questions remain?
  • Arther Kleinman's cross-cultural medicine questions (260).
    • What do you call the problem?
    • What do you think caused the problem?
    • Why do you think it started when it did?
    • What do you think the sickness does? How does it work?
    • How severe is the sickness? Will it have a short or long course?
    • What kind of treatment do you think the patient should receive? What are the most important results you hope she receives from this treatment?
    • What are the chief problems that this sickness has caused?
    • What do you fear most about the sickness?
  • Model of mediation instead of coercion. Negotiate with another Hmong or a medical anthropologist. Compromise must come from both sides.
  • "If you can't see that your own culture has its own set of interests, emotions, and biases, how can you expect to deal successfully with someone else's culture?" (261)
  • Mindfulness of my own emotions and reactions can improve my ability to be a healer. 
  • Which is more important? Life or Soul? (277)

Tuesday, August 19, 2014

Thinking Fast and Slow by Daniel Kahneman

Two selves
  • remembering self constructed by system 2 but still have duration neglect and peak-end rule following. This was demonstrated with the cold hand test.
  • experiencing self is in the moment, used to create the U-index of unpleasantness.
Econs and Humans
  • Econs act rationally always, they read small print, and calculate the value of two bets.
  • Humans are not well described by the rational agent model. Noto to say they are irrational, but they often need help to make more accurate judgments and decisions especially considering that they have system 1 and system 2 thinking giving them conflicting answers.
  • The failure of humans to act rationally leads to libertarian paternalism which is based on the idea that "freedom has a cost, which is borne by individuals who make bad choices, and by a society that feels obligated to help them." Protecting individuals against their mistakes is not controversial if you realize that humans do not follow the laws of economics.
Two systems
  • System 1 is prone to heuristics, meaning it generates answers to related questions to the one actually asked. System 1 does not realize when the information it is using to make decisions is unreliable or sparse. What you see is all there is, intensity matching, associative coherence, anchoring, nonregressive predictions, overconfidence, and many others.
  • System 2 is who we think we are, articulating judgments, making choices, but it often endorses or rationalizes ideas and feelings that were generated by system 1. System 2 is prone to narrow framing. You can get system 2 to kick in by getting outside observers to introduce doubt into your decisions. Checklists, reference-class forecasting, and premortems. 

Monday, June 16, 2014

The Stranger by Albert Camus

Something connects these books written once WWII had begun, all within the context of WWI, pure dystopia.
Camus here paints a picture of a man who may be autistic or perhaps just disillusioned. There is excruciating detail of the protagonist's downfall reminiscent of Crime and Punishment.  

Sunday, March 30, 2014

The Diving Bell and the Butterfly by Jean-Dominique Bauby

able to move only his left eye
he writes this entire book
and records for us some of his thoughts and experiences
then we sit
with our catered lunch
and try to put ourselves in his shoes
would we want to go on living?
better to be happy demented than fully with it yet locked in?
hard questions without clear answers


Thursday, March 27, 2014

A Fortunate Man: The Stories of a Country Doctor by John Berger

"It is generally assumed that doctors take a professional view of suffering"
"Doctors use a technical, entirely unemotional language".
"Increasing specialization encourages an increasingly scientific view of illness". 

"He never separates an illness from the total personality of the patient- in this sense, he is the opposite of a specialist."

"Most important of all, he considers that it is his duty to try and treat at least certain forms of unhappiness". 

"He can try to extend the meaning of sex for them. But the more he thinks of educating them - according to the demands of their very own minds and bodies before they have become resigned, before they accept life as they find it - the more he has to ask himself: by what right do I do this? It is not certain that it will make them socially happier. It is not what is expected or wanted of me. In the end he compromises - as the limitations of his energy would anyway force him to do; he helps in an individual problem , he suggests an answer here and an answer there, he tries to remove a fear without destroying the whole edifice of the morality of which it is part, he introduces the possibility of a hitherto unseen pleasure or satisfaction without extrapolating to the idea of a fundamentally different way of life."

"If the man can begin to feel recognized - and such recognition may well include aspects of his character which he has not yet recognized himself - the hopeless nature of his unhappiness will have been changed: he may even have the chance of being happy."

"How is it that Sassall is acknowledged as a good doctor?"
"He is acknowledged as a good doctor because he meets the deep but unformulated expectation of the sick for a sense of fraternity. He recognizes them. Sometimes he fails - often because he has missed a critical opportunity and the patient's suppressed resentment becomes too hard to break through - but there is about him the constant will of a man trying to recognize."

"It is as though when he talks or listens to a patient, he is also touching them with his hands so as to be less likely to misunderstand: and it is as though, when he is physically examining a patient, they were also conversing."

"Previously the sense of mastery which Sassell gained was the result of the skill with which he dealt with emergencies. The possible complications would all appear to develop within his own field: they were medical complications. He remained the central character. 
Now the patient is the central character. He tries to recognize each patient and, having recognized him, he tries to set an example for him - not a morally improving example, but an example wherein the patient can recognize himself... he 'becomes' each patient in order to 'improve' that patient. He 'becomes' the patient by offering him hi own example back. He 'improves' him by curing or at least alleviating his suffering. Yet patient succeeds patient whilst he remains the same person, and so the effect is cumulative. His sense of mastery is fed by the ideal of striving toward the universal."

There is so much more in this essay, so much I cannot yet understand. In that way, I mark this as something that I must come back to, maybe repeatedly, in an attempt to build off of, and not just repeat Sassell's journey.

Interestingly, Sassell committed suicide, though many have suspected that he suffered from bipolar disorder, and never received cognitive behavioral therapy.